The Administration for Community Living (ACL) is seeking input on the challenges faced by family caregivers from individuals and organizations that capture the breadth of the family caregiving experience.

This information will be used to assist the Family Caregiving Advisory Council [acl.gov] in developing its initial report to Congress and to inform the development of the national family caregiving strategy. It also will be used to help the Council plan future activities, including public listening sessions that will begin in 2020.

To provide your input, please complete this form no later than 11:59 p.m. EST on Friday, February 7, 2020.

Your name and email address are required, but you many complete as many or as few of the remaining questions as you would like. Please do NOT include personally identifiable information such as names of anyone other than yourself or addresses, phone numbers or Social Security numbers of any individual.  Submissions that include such information will be deleted without review.

Background:

The RAISE Family Caregivers Act, which became law on Jan. 22, 2018, directs the Secretary of Health and Human Services to develop a national family caregiving strategy. The strategy will identify actions that communities, providers, government, and others are taking and may take to recognize and support family caregivers, and will include:

• Promoting greater adoption of person- and family-centered care in all healthcare and long-term service and support settings, with the person and the family caregiver at the center of care teams
• Assessment and service planning (including care transitions and coordination) involving care recipients and family caregivers
• Information, education, training supports, referral, and care coordination
• Respite options
• Financial security and workplace issues